Friday, October 31, 2008

Happy Halloween get it down

Halloween 1999
 Happy Halloween guys I had  a fun time  today   I went trick or treating with LM today it was so fun  

 I showed MS A pic to L when i spotted his older brother's year book and looked at his from a while back.  


    I am  feeling lazy so here is the  a poem about t21



My face may be different
But my feelings the same
I laugh and I cry
And I take pride in my gains
I was sent here among you
To teach you to love
As God in the heavens
Looks down from above
To Him I'm no different
His love knows no bounds
It's those here among you
In cities and towns
That judge me by standards
That man has imparted
But this family I've chosen
Will help me get started
For I'm one of the children
So special and few
That came here to learn
The same lessons as you
That love is acceptance
It must come from the heart
We all have the same purpose
Though not the same start
The Lord gave me life
To live and embrace
And I'll do it as you do
But at my own pace

Thursday, October 30, 2008

Questions ancered

What kind of therapies do you recieve? I was also wondering what kind of plans do you have after high school? College? Career?

  right now I have  ST  which I HATE and I  have someone to help with OCD.
 After  high school w I hope to go to collage if  my ocd will disappear . I have  yet not  sleep over at anyone's else ehouse  so a dorm   we will have to see. I know I want to  go into  elementary school with a focus on Inclusion and a new  program for kids with NLD AS  but that is a whole other post  

come back tomorrow for  My Halloween Post  and The last  31 of 21 

Wednesday, October 29, 2008

Get it down: My book excerpt


The Invisible teens is about six middle school students who have disabilities/ Alexis Bounding is the character that has a lot of my personalty in it, She Has mild Cp and has NLD as well. This excerpt will help u get to know Alexis Bounding more I hope y like it.
Do Not Not Copy without my permission ( I am a reasonable girl all y need to do is ask and include the link to my blog
The bell rang and the teacher came inside with the girl who dropped off her brother and introduced herself again took the morning role and handed out a packet of papers. Among them was a syllabus of the class, a list of required mar tiles we would need for her class, a concert sheet that she used to keep in touch with our parents or guardians and a homework colander that we get every Monday for the remainder of the year . “Okay guys now I want to see if you guys studied for the capitals this summer,” Ms Cronic said. “Now what we will do is start here,” Ms .Cronic pointed to the desk on next to mine. “When I point at you introduce yourself and then recite the state’s name and its capitol.”
The boy beside me said ”My name is Joel Anderson. The started Ms.Cronic is pointing to is Nevada and its capitol is Carson City”.
“Your turn,” she says to me.
“I’m Alixes Bounding. The state Ms.Cronic is pointing to is Alaska and its capitol is Juneau.”
“What” she said. The whole class energy was on me it was if my cell phone had went off in the middle of class.
“My name is Alixes Bounding. The state Ms.Cronic is pointing to is Alaska and its capitol is Juneau.”
“Alyssa whets the state’s.”
“My name is Alixes not Alyssa”
“Alixes “ she said looking at the seating chart.
“ My name is Alixes Bounding. The state Ms.Cronic is pointing to is Alaska and its capitol is Juneau.”
“No not Shasta” I saw two girls whispering and could bet you it was about me. I knew the state’s name . The teacher was mocking me by saying things that was anything but the state’s name. I wanted out of the chair away from this mortification.

“Alaska Alaska,” I said
hoping someone would understand me .
“I’ll help you out the state’s name is Alaska . What’s the capitol?” Ms.Cronic said.
“I know it’s Alaska and the capitol is Juneau,” I said.
“What?”
“Juneau,”
“Jupiter” said the teacher, ”sorry honey that’s a name of a planet”. Looking at Joel Anderson I could tell he was trying hard not to laugh. When I did this he began to giggle and so did a fewer others.
“Juneau,” said one of my classmates. I turn around to see a girl blond hair and hazel eyes whose t- shirt said born to play Soccer written in bubble letter the girk who droped off her brother
“Vary good . The capitol of Alaska is. ” said Ms. Cronic.
“ Jupiter” said Joel Anderson. The giggling that had continued picked up the rest of the class except for the girl, the teacher
“Hay that’s not funny,” said Ms. Cronic, “everybody makes mistakes. Alixes just got confused that’s all. Now who is next .”

Tuesday, October 28, 2008

Get it down: I love to read a book




When I was little ,my parents would take us to the book store and let us select one book per child thus we come home with three chliderens books. When i was in the third grade I picked up this book called Whats Wrong with Timmy by Maria Shriver and my mom told me about the special Olympics which I would partake in a couple of years.

The story is this . A girl and her mom are at the park and the girl gets curious about a boy that has a disablity.( I think it is supposed to be DS) Her mom exaplains to her that he is not all that different and like all childerens storyies the two kids become great friends and live Happly ever after. A great book that celbrate friendship and the samesness in disablites.

Monday, October 27, 2008

Get it down Inspiring leader

Happy3rd Bday R

Today is R birthday . He is 3. On Sunday Aunt L and Uncle M had a pumpkin carving which I missed . The last time he was here he wanted to hear Boomdia over and over again



Happy B day R I love y and I hope to see you and C too

Who knows R might enjoy Scince in a few years.

Uncle M next time y come down y owe me a remach in Mario Cart and Maro Party

Saturday, October 25, 2008

get it down:website

 the NDSS  website 
The T21 message bored  (which I have   scan from time to time  for a while  now)


    for  those with  NLD and or AS this  is a new message board  that was put together by someone in  Northern CA

get it down questions for me anser one

,Delilah shulman  asked

  Ru  in a wheelchair?

nope when I was little my parents took me to a park  and let me climb  up and down the slide

Thursday, October 23, 2008

Get it Down:Slowing Down to Enjoy the Sights and Sounds of Childhood


Spending time with LM is like opening a Christmas present and being pleasantly surprised because it was not on your list, but you enjoy it all the same. L M is a year my junior. He has blonde hair and blue eyes. His name might be L but he prefers to be called Michael Jordan. Needless to say, he is a huge basketball fanatic. Surprisingly, L and I did not meet on a basketball court. We met at Judo class where he is now an orange belt. L an easy-going kid, but that does not mean to say he is always happy. He gets grumpy and angry and he doesn't like to admit his defeat. L lives near my school, but unfortunately for all the students and staff will merely be a name without a face. L will live through the stories and the essay I am about to tell you. But chances are, you will never meet the Michael Jordan of San Mateo. The reason being is that L has to go to our rival school because he has Down Syndrome and attends a special program there.
The summer before the eighth grade I was invited to the M's house to spend time with L. Although the intention of my visit was to have fun on a summer's day I learned a lot by going to his house. He gave me a quick tour of his house before leading me down to his room that he shared with his brother who is a year my senior. Stacked up along his wall were video boxes. The video boxes took me back to when I was young because there were Disney movies. L had a wide range of selection which ranged from Mulan to Aladin. It looked to me that he had all the collection. "Lets watch Mulan two ." L said bring out the DVD box. I was not so sure about that . I mean I did not want to tell L that my personal collection was gathering dust because I had grown out of them. L did not want to take no for an answer so after playing outside L played the video. As the movie was playing L pointed to Mulan and said " That is my sister. " He proceed to do this and it hit me that L was using his imagination to put himself and his friends inside the movie. At the time I did not think much of the move. I do not remember much of it except Lu sat entranced by the story and sang along with the songs.
L has taught me that it's ok to do whatever it is that makes you happy. Even if it goes against the trends and thoughts of society. L has taught me that it's ok to be different and that everybody matures differently. Some people might mature faster than others but in the end they do. L has taught me that a childhood hobby can carry on into teenage years even if it is only for kids. The most important thing that L has taught me is to not assume that a person is incapable of doing anything.
L was thirteen at the time of our play date but yet he still loved watching Disney movies. Some people might just write him off as less capable but mankind can learn a thing or two from him. Mankind's favorite saying is the grass is greener on the other side, whether it is adulthood or a different job or classroom. Humans can learn to enjoy their side of the grass and if you happened to get on the other side it would merely by an unexpected Christmas gift instead of a dream. Adults are always telling little kids that " they are such a big kid" we should not say this because it's impression is that being little is not okay. Instead of growing up being like the 50 meter dash man should slow down to enjoy the sights and sounds of childhood. It is surprising what someone with an intellectual disability can teach you about life.

Tuesday, October 21, 2008

get it down homevomeing queen

 We had our homecomeing today .  I rember when I was a freshman I through  that    it be impossable to win and stuff like this but it is true.   In my english class   a npy anomed me joke, I did not want to go to homecomeing so i told my class not to vote for me, That plus it is hard to tell when someone is nice  or putting on a joke  sigh

any way here is  a wonderful  article showing that  inclusion can impact typical kids

   here is where i got this from



Queen's court

A crown made of friendship

Girl with Down syndrome wins homecoming honor —and peers' respect. See more photos: A magical homecoming


Anne Jennings celebrates with a member of her court after she was named Libertyville High School 's homecoming Queen. (Family photo / October 18, 2008)

Now that she's royalty, Anne Jennings dances down the hallways, bursts into excited giggles and hugs her BFFs, or "best friends forever," without warning. Of course, she did pretty much all those things before being named homecoming queen at Libertyville High School, but somehow, life has become more magical.

As a 17-year-old with Down syndrome, the senior "has been walking on air" since being crowned this month.

"Before, I was just plain me," said Jennings, selected by student vote out of 17 nominated girls. "When I was queen, it changed. It's amazing. Everyone loves me. I love me."

Her mother's videotape of the Oct. 3 school assembly when her daughter was crowned says it all. After Jennings learned that she was among the top five members of the court, the video images began shaking. By the time the crown was placed on Jennings' head, the background noise boomed with the sounds of students cheering wildly
  By then, Ellen Jennings said, she had dissolved into tears, explaining why the video images bounce from floor to walls and back to her screaming, happy daughter.

"Amazing. Unbelievable," she said later. "You teach kids to do the right thing and treat people all like individuals, and look what happens."

She credits the warmth shown by classmates to the years that Jennings spent in regular education classrooms, where she was taught through 8th grade. Since entering high school, Jennings has spent more time in separate special-education classes, but she has maintained friendships from early childhood.

Megan Collins, 16, a junior, is among those who voted for Jennings.

"Once she was nominated, she was so happy and excited," Collins said. "I heard her say, 'I don't want people to vote for me out of pity' because of her challenges. I knew she would appreciate it more than the other girls."

Lauren Vogg, 14, a freshman, attended Adler Park Elementary School with Jennings. Today, Vogg and her friends volunteer for a program called Best Buddies that teams them with students with disabilities. She voted for Jennings.

"I think over the years, we have recognized her more as a high school student and not just a person with special needs," Vogg said.

Other Libertyville students started a Facebook group, "Annie Jennings for Homecoming Queen," that accumulated more than 300 members—something Ellen Jennings didn't discover until after her daughter was crowned.

"I was just blown away," she said.

One person wrote on Facebook: "Annie has already won in my book! She is beautiful outside AND more importantly INSIDE."

At school, Jennings is still glowing, said security worker Mike Dolan.

Every day at 10:45 a.m., she returns from an off-campus work program, hops off a bus, enters the school and greets Dolan with a fist bump, which she calls "knuckles."

"She has been walking on air," Dolan said.

Jennings shares lunch, gym and keyboarding classes with the "normies," as she refers, with affection, to her mainstream peers. After graduating from Libertyville High next spring, she plans to enter Hawley Transition School in Mundelein, where she will learn independent-living skills such as how to manage money, use public transportation and keep a job.

She hopes to attend college after that, and marry her boyfriend, who took her to the homecoming dance, she said. She relives that weekend every time she looks at the pictures, with her smiling in a black dress and shawl.

"The paparazzi took a lot of pictures," said Jennings, a Special Olympics athlete and fan of the Jonas Brothers. "We ate out at Lino's. I had to give a speech."

For years Jennings has struggled with questions about what makes her different from others.

"She would ask, 'Why did God make me have Down syndrome?' " Ellen Jennings said, sitting near her daughter in the family's living room.

Anne Jennings, exasperation in her voice, piped up: "And she has no answers to give me."

Her mother paused, then replied.

"Your job is to figure out what your gifts are and what you have to contribute to the world," she said.

In some ways, being named homecoming queen has changed the way Jennings thinks about Down syndrome, "that it's not the worst thing in the world that could happen to someone," Ellen Jennings said.

Her daughter agreed, saying that at first, high school was scary and sometimes boring.

Friday, October 17, 2008

GET IT Down : Respect

I know I know I missed a day but I was working hard on a project for history which dis eves a post of it's own about why it is a big deal that I fins ed it in two days. So until then watch this in english and in Spanish. MS A where have y been I have missed your comments.







Preveiw of comeign actractions

I started writing Invisible teens when I was in eighth grade. It is about an Eighth grader with NLD and CP who just moves from the Bay area ( where I am from) to a smaller state. I am only posting sinpts of the book on here. PLEASE PLEASE do not copy this with out my permition. I am willing to let you link to it to red react readers to my blog.

Wednesday, October 15, 2008

get it down letter

written by a young adult with NLD & AS  

Tuesday, October 14, 2008

Get it down Skiing story.






Conquering Level Three

“Go over the hump,” said K. I was at Mt. Rose going over the little hill. I was in Nevada taking a ski class. The class was one-on-one for special kids. K gave me a big push. I went on top of the little hill. K came up and pushed me. I landed perfectly. “Good job,” said K. “Time to go in for lunch.” We went into the meeting room. There was lots of tables with food on them. I sat down at a table. My 2 sisters, Book gal and Princess were already there. They had on red helmets and ski boots. They had yellow vest with their report cards on them. We all sat together to have lunch and hot chocolate!

After lunch K and I went to a different place to ski. This place was marked Level 3. My sisters went to ski somewhere else. We headed towards the scary ski lift. When we got on the ski lift I asked K, “Have you brought any Rosebuds up here?” “Yes,” said Kate. In 10 minutes we were at the top. I was nervous. I felt butterflies in my stomach. K faced me as we started down the hill. We had to turn a lot going down the hill. We crossed the path to the Level 2 hill. We went over the little bumps and skied down to the loge. My mom, dad, sisters and brother drove to the hotel. On the way my dad said, “I saw you skiing with K. I didn’t want to bother you. I am proud of you.”
“I’m proud of myself too Dad,” I said happily.



Why write post that. beside the fact that it is a cool story. It also shows that maybe disabled people might need a little extra help. They can feel pride and accomplishment.

Monday, October 13, 2008

get it down My Father

  My dad is the best .  He  is what my mom calls a walking  dictionary. He  is knowigeable  about  every subject making  homework easy.   I have lots to tell about my dad but guess what HW is calling my name
 Until then meet  a organization that helps DADS perent  very special  kids and teenagers


I don't Have DS put I am kid that loves  my dad . Take a moment to see why 



Sunday, October 12, 2008

Sunday Grains of gratude


1 I played in my first ever golf torment for my school last Wednesday It was so fun./ I scored a 79 the par was 50 bu dad and GO thought that was great I so wished I brought my camera

2 That Dad stayed with me at boweling and helped me I know I know I have a great dad

3 Went to big wave harvest and had a blast. My mom and went it was a hour drive for six miles. ( I hate traffic) I wishAndi & ms A would have came they had some fun things to do and free pumpkins

4 My english bud who I am doing a project with is nice.

5 had a fun time at school this week. MR MCG is always funny. In spainsh we played monta moscas, dictionary, and Scrabble in chem we played with something that made cool colors Can y tell I am struggling with chem ha ha ha .

PS My family (ahem right only Mom) would aper cite your no stress prayers. I am still havening difficulty in chem and have a meeting coming up to see if I do belong at my public high school.



Saturday, October 11, 2008

Get it down : do y understand me? good

 From the time I was little  i have had trouble talking due to my cp. This  has limited my ability to order food  at restaurants and stuff.   L   my pal with DS  has trouble. Specking clearly  for me  feels like a wall. I know how   to  move my jaw and tongue but it dose  not  listen to me.  It has a mind of it's own.    


 this  is a video from Sesame street that shows how  hard it can be for someone who is deaf. Or a speech impediment to  talk to strangers 



Friday, October 10, 2008

get it down questions for me sticky post scroll down for more




The title explains it all do y have any questions about CP NLD OCD or what it is like to grow up with a disabilitiy ? if so leave a comment. tomorrow is the big wave harvers. I am hopeing for a great weekend



Note I will not ansew this

what is your OCD?

Thursday, October 9, 2008

get it down The Furture

Something that scares me the most is if I will have OCD my whole life . I have two ancers for this question

1 I will get over

Furture go to collage have a job and advocate for special needs


2 MS A quote" just think of the worst possible solution.

Future live with mom and Dad don't do collage, advocate for disabled

I might have the option to live at Big wave . Big wave is a housing chumming for the disabled, Big wave is being started by by Big J. Big wave is hosting its second annul harvest. It should be fun soes anyone want to join have to leave a comment

Tuesday, October 7, 2008

get it down Ability tuesday




 As you might know Princesss and book gal  all v ball players.  My abilty is that on  my sports court I can serve the ball welll over handed. I   might try to play SO vball  this march  Until  then I know I will play v ball with the  family.   I would love to   post pics and video but i need  to do hw

Monday, October 6, 2008

get it down I miss the playground



I miss the playground. I rember when I was in primary school I looked forward to recess and lunch. Recess and lunch were fun there was jumprope to learn.I became a pro at this when i was in Kindergarten. I loved playing on the playground doing the monkey bars and cimbing through the the tubes.

But what I miss most is the aceptance On the playground it was easy to join in a game of knockout or tag or handball. teasing still happened. I remeber a indent in pre K but for the most part My time from K-5 was great

My mom says that you learn to fear people who are different,. Mabey it is kinda like santa Clause you believe in him when your young but as y get older you Belize it is just your mom and Dad.

C is in K now and she told me that I seek wired. It hurt because in five years she might think people with disabilities are wired and avoid them and mabe even bully them. I fear that day. The day when kids realize that people with disablities are wired and bad.

I will always treasure the time we were playing hide and seek on Saturday night. THat took me back to the times of the playground

Sunday, October 5, 2008

Sunday grains of graditude

My cousins came down I had a great weekend with them

I struck someone out on Friday. Poetry Alive came to my high school. I went with MS H's Spanish class and go picked for Casey At the bat. I remeber reading a picture book in elmerty about it,but I did not remeber the ending. So I was the pitcher . When they said Mighty casey struck out I was like whoo I won I struck casey ( played by a boy that I have known since 2 grade).


Princess game they got 2ed in the first brakcet but It was a exciteing game

sorry it is short I need to study for my teast

Get it down 2008 welcome to holland

Did y know a writer from sesame street has a adult son with DS? YUP . the writer is Emily pearl kingsley and she wrote Welcome to Holland. I can relate because of having OCD come unexpectedly. I did not have it for a good maggoty of my life. I got it when I was 15 so I have lots of memories without it Hopefully my ocd won't bother me when I am older.





Welcome to Holland

by Emily Perl Kingsley


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome To Holland".

"Holland?!?" you say, "What do you mean "Holland"??? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy"

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around…and you begin to notice that Holland has windmills...Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes that's where I was supposed to go. That's what I had planned".

And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very significant loss.

But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things...about Holland.

© 1987, by Emily Perl Kingsley. All rights reserved.
Reprinted with permission of the author.

Saturday, October 4, 2008

Get it down: what is Nld anyway


I know I know DS month but C and R are here, and I have spent the whole day with them. went to Princess v ball game and have been chasing them around. They are going to the hotel now so I am being lazy so Click here to learn about nld. If y want to anyway mabey then then y might be able to offer some advice about NLD. Now off to wach movies with C who is staying the night
PS: Sorry andi I wish I could have gone to the buddy walk I will post the big wave info here tomarrow or Monday

Friday, October 3, 2008

get it down : I'D go most anywhere to find where I belong


      I have something  called  NLD which    I have had since I was  six. It has never stopped before  from attending mainstream school.        This year however, I    have had on two times asked  myself   if I truely belong  at my  current high school. This  high school  has no  special day class  that I can hang out in and MSA  is no longer a lunch time friend  LG is in soutrhen  CA and  A is now friends with DD and is rude to me.       I don;t realy think  a SDC   class is the ancer . I love my AP history  class., but at the same time I  know I  am missing out  a lot socaily. I have yet to attend  a dance since entering high school. It's not that I am shy.  I am  veary  well known.    I know just about every teacher and  kids always  know  my name.    I mean they will  say hi to me in the hallways  and I have a lot of aquances but  no friends. Friendship  have always  been  hard for me to  navagate  and OCD  comeing  into my life   makes it    nearly impossible. What  do y guys think.   

on a lighter note
  Cousins C and R  are coming  tonight  I am so excited 
 hopefully I will have a good weekend to make up for the crappy school week 


this clip explains thetitle g
   

Thursday, October 2, 2008

Get it down 2008 collage


I have a lot of test this week for school

Wed-algebra
Thursday- Spanish
Friday math and chemistry
and on Monday English and Us quiz from the time I entered mainstream my parents had told me that after high school.

MS.A thinks t that I can go too. why else would she had
sent me this . and a video from you tube of a collage in CA whose program is design to help people with intellectual disabilities go to collage

Wednesday, October 1, 2008

Get it down


* If y have read this blog before come back tomorrow unless readers tells u other wise Hi and welcome to the 31 for 21 change. I do not have down syndome and nether dose my bothers and sister however, I have a friends with DS who y will probly hear about thiese next few weeks. I know what y may be thnking why is a teenarger joinging in on this? The reasson is because I am disabled too. I have NLD Cp and anixeity. I am thnking of running this t21 for information on NLd aweanes while writeing about DS . I have a bad spelling and grammer , but if y see opast that then this month orught to be fun. So enough about me tell me who are y. Please leave a comment.